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In the last year and a half I have had the opportunity to help several families find their way to helping their children. What a pleasure it is to hear that at least 2 children are doing well following successful surgery! Including weight loss and gains in height!!
Over the last few months I have talked to so many people who believe their children have Cushing's and I hope that I've been of some support. I tell people that I talk to all over the area and the US that I feel like I am the female Jerry Lewis. I talk to one person at a time or several people at the time. A couple of months ago our bank, Washington Mutual, had a customer appreciation day and I set up a table with the brochures and pictures and talked to so many of them about Pediatric Cushing's.
As we all know, part of getting a diagnosis is finding the right physician; one who will do the appropriate testing. Fortunately, I've been able to refer several in the Atlanta area my son's wonderful Pediatric Endocrinologist, Dr. Stephen Anderson.
In the spring of 2008 one of the sororities here in West Georgia is going to have a battle of the flag for Cushing's Awareness. I intend to contact our Senators and Congressmen and ask them to pass the bill to make Cushing's Awareness a permanent proclamation here in Georgia. I honestly believe that we have to be advocates for our children and make sure that doctors check them for Cushing's. I have said all along that I will not let one more family go through this alone and will not stand by and watch another child die because doctors don't think to check our children for Cushing's. I hope that everyone of us will continue to ask doctors to check for Cushing's and don't take obesity as an answer.
Let's make Cushing's Awareness known to all of our Pediatricians. Spring, 2007 |